Frequently Asked Questions About Volunteering for Research Studies
It is simple! A research study could not proceed without research volunteers. Although you may not receive direct benefits from study participation, we will gather invaluable information about how your brain is organized and functions. This information may be compared between individuals in different populations, for example, healthy subjects and patients with dystonia. The research studies give us knowledge that may help people in the future.
We are actively recruiting patients with dystonia and healthy research volunteers for the studies listed above.
Once you contact us, we will explain the details of the study and ask several questions to determine whether you meet the study eligibility criteria. If you qualify for participation, we will schedule your visit with us. During your visit, we will go over the study procedures in greater detail and obtain your written consent. Depending on the specific study procedures, we may acquire detailed information about your medical and family history, record your voice and speech, and administer tests to examine your general development, memory, handedness, sensory perception, and cognitive skills. We may also ask you to donate a small amount of blood for genetic testing. If you meet the study criteria, we may ask you to participate in the study involving a new investigational drug. We may also ask you to undergo an MRI, during which you will need to lie still for some time, as well as perform different tasks, for example, sentence production or finger tapping.
Please keep in mind that your participation in research studies is entirely voluntary. You may choose not to participate. If you decide to participate in the research study, you may withdraw at any time without penalty.